LJUBLJANA, SLOVENIA (18-19 NOVEMBER 2021)
28th NEC FORUMAGENDA
Day 1 - 10:00-17:00
Welcome addresses
10:00-10:20
Marjeta TERČELJ ZORMAN, Vice Chair of the Commission of the Republic of Slovenia for Medical Ethics, University Clinical Centre Ljubljana
Janez POKLUKAR, Minister of Health, Republic of Slovenia
Joanna DRAKE, Deputy Director-General in DG Research and Innovation (R&I) at the European Commission
Božidar VOLJČ, Chair of the Commission of the Republic of Slovenia for Medical Ethics
Bioethical and moral challenges in pharmaceutical genetic research
Chair: Marjeta Terčelj Zorman – Vice Chair of the Commission of the Republic of Slovenia for Medical Ethics, University Clinical Centre Ljubljana
10:20-10:40 Application of Genomic Testing in Clinical Practice; Borut Peterlin, Head of Clinical Institute for genomic genetics, UMC Ljubljana
10:40-11:00 Ethical Aspects of Genetic Data Acquisition, Management and Disemination; Matjaž Jeras, The Chair of Clinical Biochemistry, Faculty of Pharmacy, Univestity of Ljubljana
11:00-11:15: Coffee break
11:15-11:35: Title to be confirmed; Tatjana POPLAZAROVA, Vice President and Head of the Office of the Chief Medical Officer in GSK Vaccines, Belgium
11:35-11:55: Reflecting on Human Genetics Today: Bioethical Contributions; Andrea Vicini, Michael P. Walsh, Professor of Bioethics, Theology Department, Boston College (USA)
11:55-12:25: Discussion of the presentations
12:25-13:25: Downtime (lunch)
Digitalisation and artificial intelligence
Chair: Paweł Łukow, Chair of the Ethics Department, Faculty of Philosophy, University of Warshaw; Chair of Committee on Ethics in Science at Polish Academy of Science
13:25-13:45: A Practical Ethics to Protect Rights and Values in AI Systems; Gemma Galdon Clavell, Founder and CEO of Eticas Consulting, University of Barcelona, Spain
13:45-13:55: Discussion on the presentation
13:55-14:15: Ethics by Design for Technologies with High Socio-Economic Impact; Eva Buchinger, TechETHIOS Project Coordinator, Austrian Institute of Technology
14:15-14:25: Discussion on the presentation
14:25-14:45: AI Technologies in Digital Health: Benefits and Ethical Challenges. Eva Thelisson, Co-founder and CEO of the AI Transparency Institute
14:55-15:10: Coffee break
Ethics and international cooperation in research
Chair: Helene Ingierd, General Director of the Norwegian National Research Ethics Committees
15:10-15:30: The Role of Ethics During the Pandemic in Republic of Korea; Kyungsuk Choi, School of Law, Ewha Womans University, Member of UNESCOS’s International Bioethics Committee (IBC)
15:30-15:40: Discussion on the presentation
15:40-16:00: Increasing the Impact of International Cooperation: Engaging and Involving Local Communities in the Co-production of Technology for Health Research; Pamela Andanda, University of the Witwatersrand, South Africa; Member of UNESCO’s International Biooethics Committee (IBC)
16:00-16:10: Discussion on the presenation
16:10-16:30: Equitable Research Collaborations with Partners in Resource-Limited Settings: The TRUST Code; Doris Schroeder, Univesity of Central Lancashire, UK; Joshua Kimani and Adhiambo Odhiambo, Partners for Health & Development in Affrica, Kenya; Leana Snyders, San Counchil, South Africa
16:30-16:40: Discussion on the presentation
16:40-17:00: Pandemic Preparedness in the European Union, Way Forward; Katja Neubauer, Senior Expert in the Unit D.1 Combatting Disease, DG Research & Innovation, European Commission
17:00-17:10: Discussion on the presentation
End of day 1
Day 2 - 09:30-15:50
Research integrity and instituional responsibilites
09:30-09:45: Chair: Lex Bounter, Vrije Universitet, Amsterdam, The Netherlands; Setting the Scene for New Challenges in Research Integrity
09:45-10:05: Standard Opening Procedures for Research Integrity; Niels Mejlgaard, SOPS4RI Project Coordinator, Danish Centre for Studies in Research and Research Policy, Aarhus University
10:05-10:15: Discussion on the presentation
10:15-10:35: Empowering Students Through Evidence-Based, Scaffolded Learning of Responsible Conduct in Research (RCR); Mariette Van Den Hoven, INTEGRITY Project Coordinator, University of Ultrecht, The Netherlands
10:35-10:55: Research Integrity Among High School and University Students; Roman Globokar, University of Ljubljana, Faculty of Theology, member of the Commision of the Republic of Slovenia for Medical Ethics
10:55-11:15: Discussion on the presentation
11:15-11:30: Coffee break
11:30-11:50: Institution Responsibility in Oncological Research; Branko Zakotnik, Institute of Oncology Ljubljana, Slovenia
11:50-12:00: Discussion on the presentation
12:00-12:20: The Embassy of Good Sicence; Guy Widdershoven, EnTIRE Project Coordinator, Amsterdam University Medical Cnters, VU University, Amsterdam
12:20-12:30: Discussion on the presentation
12:30-13:30: Downtime (lunch)
The future of ethics committees, their role and impact / strategic vision fot next 10 years
Chair: Jena Francois Delfraissy, President of the French National Ethics Committee for Life Sciences and Health (CCNE)
13:30-13:50: National Ethics Committees; Current Challenges and Future Directions; Effy Vayena, Chair of the Hellenic National Commission for Bioethics & Technoethics, Greece
13:50-14:10: Exploring Alternatives: Caring Rather Than Clearing; Marjo Rauhala, Research Ethics Coordinator, Vienna University of Technology, Austria
14:10-14:25: Coffee break
14:25-14:45: Ethics Committes: Are They Still Fit for Purpose?; Edward Stellwagen DOVE IV, University of Edinburgh, United Kingdom
14:45-15:15: Discussion on the presentations
Statement of the European group on ethics in science and the new technologies (EGE)
15:15-15:35: Values for the Future: The Role of Ethics in European and Global Governance; Marcel Jeroen Van Der Hoven – Rapporteur for the EGE Statement “Value for the Future”: The Role of Ethics in European and Global Governance”, Member of the outgoing European Group on Ethics in Sicence and New Technologies (EGE)
Closing remarks and future NEC activites
15:35-15:50
Isidoros Kartzas, Head of the Research Ethics and Integrity Sector, DG Research & Innovation, European Commission
Božidar Voljč, Chair of the Commission of the Republic of Slovenia for Medical Ethics
Jean-Francois Delrafissy, President of the French National Ethical Consultative Committeee for Life Sciences and Health (CCNE)
Marjeta Terčelj Zorman, Vice Chair of the Commission of the Republic of Slovenia for Medical Ethics, University of Clinical Centre Ljubljana
End of day 2