LJUBLJANA, SLOVENIA (18-19 NOVEMBER 2021)

Welcome addresses

 

10:00-10:20

Marjeta TERČELJ ZORMAN, Vice Chair of the Commission of the Republic of Slovenia for Medical Ethics, University Clinical Centre Ljubljana

Janez POKLUKAR, Minister of Health, Republic of Slovenia

Joanna DRAKE, Deputy Director-General in DG Research and Innovation (R&I) at the European Commission

Božidar VOLJČ, Chair of the Commission of the Republic of Slovenia for Medical Ethics

 

 Bioethical and moral challenges in pharmaceutical genetic research

Chair: Marjeta Terčelj Zorman – Vice Chair of the Commission of the Republic of Slovenia for Medical Ethics, University Clinical Centre Ljubljana

 

10:20-10:40 Application of Genomic Testing in Clinical Practice; Borut Peterlin, Head of Clinical Institute for genomic genetics, UMC Ljubljana

 

10:40-11:00 Ethical Aspects of Genetic Data Acquisition, Management and Disemination; Matjaž Jeras, The Chair of Clinical Biochemistry, Faculty of Pharmacy, Univestity of Ljubljana

 

11:00-11:15: Coffee break

 

11:15-11:35: Title to be confirmed; Tatjana POPLAZAROVA, Vice President and Head of the Office of the Chief Medical Officer in GSK Vaccines, Belgium

 

11:35-11:55: Reflecting on Human Genetics Today: Bioethical Contributions; Andrea Vicini, Michael P. Walsh, Professor of Bioethics, Theology Department, Boston College (USA)

 

11:55-12:25: Discussion of the presentations

 

12:25-13:25: Downtime (lunch)

 

 

Digitalisation and artificial intelligence

 

Chair: Paweł Łukow, Chair of the Ethics Department, Faculty of Philosophy, University of Warshaw; Chair of Committee on Ethics in Science at Polish Academy of Science

 

13:25-13:45: A Practical Ethics to Protect Rights and Values in AI Systems; Gemma Galdon Clavell, Founder and CEO of Eticas Consulting, University of Barcelona, Spain

 

13:45-13:55: Discussion on the presentation

 

13:55-14:15: Ethics by Design for Technologies with High Socio-Economic Impact; Eva Buchinger, TechETHIOS Project Coordinator, Austrian Institute of Technology

 

14:15-14:25: Discussion on the presentation

 

14:25-14:45: AI Technologies in Digital Health: Benefits and Ethical Challenges. Eva Thelisson, Co-founder and CEO of the AI Transparency Institute

 

14:55-15:10: Coffee break

 

 

Ethics and international cooperation in research

 

Chair: Helene Ingierd, General Director of the Norwegian National Research Ethics Committees

 

15:10-15:30: The Role of Ethics During the Pandemic in Republic of Korea; Kyungsuk Choi, School of Law, Ewha Womans University, Member of UNESCOS’s International Bioethics Committee (IBC)

 

15:30-15:40: Discussion on the presentation

 

15:40-16:00: Increasing the Impact of International Cooperation: Engaging and Involving Local Communities in the Co-production of Technology for Health Research; Pamela Andanda, University of the Witwatersrand, South Africa; Member of UNESCO’s International Biooethics Committee (IBC)

 

16:00-16:10: Discussion on the presenation

 

16:10-16:30: Equitable Research Collaborations with Partners in Resource-Limited Settings: The TRUST Code; Doris Schroeder, Univesity of Central Lancashire, UK; Joshua Kimani and Adhiambo Odhiambo, Partners for Health & Development in Affrica, Kenya; Leana Snyders, San Counchil, South Africa

 

16:30-16:40: Discussion on the presentation

 

16:40-17:00: Pandemic Preparedness in the European Union, Way Forward; Katja Neubauer, Senior Expert in the Unit D.1 Combatting Disease, DG Research & Innovation, European Commission

 

17:00-17:10: Discussion on the presentation

 

End of day 1

 

Research integrity and instituional responsibilites

09:30-09:45: Chair: Lex Bounter, Vrije Universitet, Amsterdam, The Netherlands; Setting the Scene for New Challenges in Research Integrity

09:45-10:05: Standard Opening Procedures for Research Integrity; Niels Mejlgaard, SOPS4RI Project Coordinator, Danish Centre for Studies in Research and Research Policy, Aarhus University

10:05-10:15: Discussion on the presentation

10:15-10:35: Empowering Students Through Evidence-Based, Scaffolded Learning of Responsible Conduct in Research (RCR); Mariette Van Den Hoven, INTEGRITY Project Coordinator, University of Ultrecht, The Netherlands

10:35-10:55: Research Integrity Among High School and University Students; Roman Globokar, University of Ljubljana, Faculty of Theology, member of the Commision of the Republic of Slovenia for Medical Ethics

10:55-11:15: Discussion on the presentation

11:15-11:30: Coffee break

11:30-11:50: Institution Responsibility in Oncological Research; Branko Zakotnik, Institute of Oncology Ljubljana, Slovenia

11:50-12:00: Discussion on the presentation

12:00-12:20: The Embassy of Good Sicence; Guy Widdershoven, EnTIRE Project Coordinator, Amsterdam University Medical Cnters, VU University, Amsterdam

12:20-12:30: Discussion on the presentation

12:30-13:30: Downtime (lunch)

The future of ethics committees, their role and impact / strategic vision fot next 10 years

Chair: Jena Francois Delfraissy, President of the French National Ethics Committee for Life Sciences and Health (CCNE)

13:30-13:50: National Ethics Committees; Current Challenges and Future Directions; Effy Vayena, Chair of the Hellenic National Commission for Bioethics & Technoethics, Greece

13:50-14:10: Exploring Alternatives: Caring Rather Than Clearing; Marjo Rauhala, Research Ethics Coordinator, Vienna University of Technology, Austria

14:10-14:25: Coffee break

14:25-14:45: Ethics Committes: Are They Still Fit for Purpose?; Edward Stellwagen DOVE IV, University of Edinburgh, United Kingdom

14:45-15:15: Discussion on the presentations

Statement of the European group on ethics in science and the new technologies (EGE)

15:15-15:35: Values for the Future: The Role of Ethics in European and Global Governance; Marcel Jeroen Van Der Hoven – Rapporteur for the EGE Statement “Value for the Future”: The Role of Ethics in European and Global Governance”, Member of the outgoing European Group on Ethics in Sicence and New Technologies (EGE)

 

Closing remarks and future NEC activites

15:35-15:50

Isidoros Kartzas, Head of the Research Ethics and Integrity Sector, DG Research & Innovation, European Commission

Božidar Voljč, Chair of the Commission of the Republic of Slovenia for Medical Ethics

Jean-Francois Delrafissy, President of the French National Ethical Consultative Committeee for Life Sciences and Health (CCNE)

Marjeta Terčelj Zorman, Vice Chair of the Commission of the Republic of Slovenia for Medical Ethics, University of Clinical Centre Ljubljana

End of day 2